Skip to Content

A Special Needs Big Girl Room!


Ava was born with a rare neurogenetic condition called Angelman Syndrome. As part of AS, she suffers from a sleep disorder, seizures, and has many special needs. Her room was designed to be both beautiful and safe, and be functional for caring for a disabled sweetheart! My dad (her Pop) built the bed from an origional design that he and I came up with, and my mom and I painted it to match the rest of her furniture. The dresser was a cheap craigslist find that I repainted, using a design pulled from her bedding.

Design Inspiration

I really wanted a bright, fun, happy place for my sweet girl, but also one that wasn't too "little girlish" and would grow with her for several years. I found a photo of a built-in bed on Pinterest, and saw the bedding in a friend's home. The design took life from there...

Decorating Style

For this room, bright and happy!

Project Details

The bed was designed and built by my incredible father. It is still needing the crown molding, but is otherwise complete! The dresser was bought off of craigslist, and then I repainted it to match the bedding. I bought a peg board at Home Depot, and hung it above the changing area/dresser as a storage solution. The bedding is from Bed Bath & Beyond, and the tent is from Target.

Favorite Items

By far, the bed! Not only was it designed and built by my dad, but we installed a seizure monitor on it so if she has a major seizure event at night, we are alerted. Everything about it is designed to keep her safe!


Leave a comment

Your email address will not be published. Required fields are marked *

  1. avatar Keylee Mccanles says:

    Can I please get blue prints my daughter has AS and would love this bed we are trying to get out of a crib

  2. avatar AP says:

    Same question as everyone above. I don’t see a reply to any of them, so hopefully you’re willing to email the blueprints to the bed?

  3. avatar Shay says:

    What a beautiful bed. Your daughter is lucky to have such a supportive family. Special needs beds are so expensive and out of reach for most families due to cost and are not covered by insurance. It is almost impossible to find plans for beds online. My 5 year old with DS and ASD sleeps in his closet with a full size foam matress and a door we cut in half. It suits his pupose for now but we would love the plans if you have them as we are moving and may.not find a house with a closet big enough to suit. Thanks.

  4. avatar Gisela says:

    Hi, This is awesome! Along with a lot of other parents on this thread my son is in need of a bed just like this, also with a seizure monitor. We are unable to get a new bed and want to use his existing bed and maybe add a frame and doors. Do you have instructions or plans? Any help is appreciated.

  5. avatar Susie says:

    Hi there! I have been searching for a bed I could love for my daughter with Angelman Syndrome. We have one for traveling, but she is still in a crib at home. I’d love to know the design for this bed. We have a friend who wants to help s build something for our sweet girl.

  6. avatar Lisa Giglio says:

    I was wondering if you could give me an idea of how much this bed cost to build and if there was a blueprint for it? I am a Make A Wish volunteer and working to have a bed made for one of my wish children.

  7. avatar Cynthia Bryant says:

    Love this idea! We are raising our 22mo granddaughter that has many rare Neuro disorders and I would love to have this built for her.. will your daddy share his blueprint? We would be grateful

    The Bryants

  8. avatar AC says:

    Our granddaughter has Angelman Syndrome(UPD). Our son is in the process of transitioning her to a big girl bed and has asked his dad to build an enclosed bed. I would love to talk to you. My name is Anne Claire Stephenson and I’m a member of most of the Angelman groups if you have time to respond I would appreciate it.

  9. avatar LorrieAnne says:

    My husband is planning to build a bed for a little girl with Angelman’s also. Would you be willing to share the plans? Your bed is perfect for her needs!

  10. avatar WB says:

    Same question as all of the above: are you willing to share or sell the plans? This bed would be perfect for my daughter as well! It’s such a princess bed!

  11. avatar sherry baker says:


  12. avatar Katie Yohe says:

    Hi! Do the doors fold back or something when not in use? This is a amazing!! I need something like this for my son who had a TBI and has seizures. And if you have a blueprint or anytbing it would be appreciated!!!

  13. avatar Amy says:

    I have a daughter who is 2 who has pitt-hopkins which is very similar to AS and I have been eying this design for months as I know we need to make the transition within a year, Im wondering the same as above if you guys happen to have the plans, or sell them. I LOVE this bed and room so much. Thank you so much for sharing!

  14. avatar Brent Ankeny says:

    We have been frantically searching for plans for a bed for our son with special needs that has long ago outgrown his crib! We came across your bed and would love to build something similar. Do you have the plans online somewhere or would you be willing to share? We would really appreciate it!!!!

  15. avatar suzanne says:


    My daughter is in so in need of a bed like this. she has severe and multiple impairments. You are so lucky that your father built this for you. is there anyway you can share the instructions or blueprint of this bed. please please reply

  16. avatar Tara says:

    Hello! My name is Tara and I have a daughter with hydrocephalus. We are currently trying to transition to a big girl bed, one that will keep her safe and while searching for ideas we found this bed and fell in love. It has everything our daughter might need in a bed. We would love to have one built but we were wondering if your father had a sort of blue print he used for the bed. And if so, would he be willing to share that with us. We would be so grateful. Thank you!

  17. avatar nancyb79 says:

    that bed is amazing, you guys did such a nice job with it! good idea with the corner ball pit too, good use of space.